Neuro-Advocacy in Lil’ Rhody: Brain Health, Brain Illness, and Brain Research

Date: Thursday, March 15
Time: 5:30 – 7:30 p.m.
Place: East Providence Public Library, 41 Grove St. East Providence (directions)
Open to: Recommended for young adults and adults
Price: Free
Space available: 85

Register for the event!

Have any of these affected your family: ADHD or autism … Alzheimer’s or Parkinson’s disease … migraine, anxiety, bipolar, or borderline personality disorder … depression, epilepsy, schizophrenia, or stroke?? For most of us the question isn’t which one, but how many?

Brain Week Rhode Island, in concert with the Association for Migraine Disorders, the Epilepsy Foundation of New England, and Cure Alliance for Mental Illness, wants you to organize! There are so many good causes related to brain health, brain disorders and brain research, and we think we can achieve more by working together. Are you a physician who wants to advocate more effectively for your patients? A patient advocate who wants better services? A scientist who wants investments in brain research? Do you want to advocate to the state of Rhode Island, the federal government, and/or insurance companies?

If the answer to any of these questions is, “Yes,” then this networking event will help you find allies and get advice from experts and your fellow advocates.



5:30 – 6:00 Social/networking period with refreshments

6:00 – 6:45 Brief presentations

6:45 – 7:30 Discussion


Tom Enright, Macrina Hjerpe, Alzheimer’s Association, RI Chapter

Mary Genco, Patient advocate

Jim McNulty, Oasis Wellness & Recovery Center

Bill Murphy, Epilepsy Foundation of New England

Julian Rodriguez-Drix, RI Department of Health

Jerome Sanes, Brown University, RI Society for Neuroscience chapter

Debra Sharpe, Brain Injury Association of Rhode Island

Catherine Taylor, URI Ryan Institute for Neuroscience, RI Geriatric Education Center


Kara Stavros, MD, is a neurologist with a strong interest in advocating for patients with brain disorders. She graduated from the Albert Einstein College of Medicine at Yeshiva University and now works for the Neurology Foundation in Providence, RI. Dr. Stavros is affiliated with Rhode Island Hospital and Women & Infants Hospital.



Fredrick (Rick) Godley, MD, FACS, is the founder and president of the Association for Migraine Disorders, and a general otolaryngologist in private practice in Providence, RI. He received his medical degree from Boston University and completed his general surgical residency at the University of Massachusetts Medical Center and his specialty training at the Yale – New Haven Hospital.


Hakon HeimerHakon Heimer is co-founder and CEO of Cure Alliance, which organizes Brain Week Rhode Island, as well as founding editor of Schizophrenia Research Forum and a program advisor for cognitive disorders at the Banbury Center at Cold Spring Harbor Laboratory.